Global Virtual Marathon to Spotlight Sickle Cell Disease on World Sickle Cell Day 2024

The upcoming 24-hour global virtual marathon, organized by the Cayenne Wellness Center and Children's Foundation alongside the Global Alliance of Sickle Cell Disease Organizations (GASCDO), is set to mark World Sickle Cell Day 2024 with a powerful message of unity and empowerment. Scheduled for June 19, 2025, the event, themed 'Global Action, Local Impact: Empowering Communities for Effective Self-Advocacy,' aims to bring together individuals worldwide to foster awareness, education, and support for those affected by sickle cell disease and trait.

Featuring a diverse lineup of activities, the marathon will include educational sessions conducted by healthcare professionals, heartfelt stories from individuals living with sickle cell disease and their caregivers, and a talent showcase that celebrates the community's creativity and resilience. Dr. Carolyn Rowley, Executive Director of the Cayenne Wellness Center, highlighted the event's role in showcasing the strength and diversity of the sickle cell community, emphasizing its potential to raise global awareness and provide much-needed education and support.

Biba Tinga, Interim CEO of GASCDO, expressed her excitement about the event's capacity to inspire and educate participants from around the globe. The marathon represents a unique opportunity for individuals and families affected by sickle cell disease to connect, share experiences, and find hope in a global community that understands their challenges.

This initiative underscores the critical need for global solidarity and local action in addressing the challenges faced by the sickle cell community. By offering a platform for education, advocacy, and celebration, the marathon not only aims to empower those directly affected by sickle cell disease but also to foster a broader understanding and support network that can lead to meaningful change. The event is a testament to the power of collective action in tackling health disparities and building a more inclusive and supportive world for all.